METRONEWS
© New Zealand Broadcasting School 2024

Living with Endo

Holly Grundy
Sophie Endo
Sophie Hetherington  Holly Grundy NZBS 27/03/24

Sophie Hetherington shares her story during Endometriosis Awareness Month.

This year Endometriosis Awareness Month showcased the theme of Living Well Together. 

Currently, roughly  1 in 10 New Zealand Women deal with the daily effects of this condition with no cure. 

Endometriosis is when tissue that is similar to the lining inside of the uterus grows on the outside. The effect of this can be seen in many different recurring symptoms. 

Symptoms of Endo breakup
The symptoms of Endometriosis HOLLY GRUNDY NZBS - Piktochart

Bloating, nausea, fatigue, infertility, chronic pelvic pain, mental side effects, and heavy bleeding both on and off a period are just some of the common symptoms related. 

A lot of women suffering from endometriosis begin seeing these symptoms at their first menstrual cycle but still don’t get diagnosed until later in life. 

According to Endometriosis New Zealand, there are a few factors that lead into late diagnostics. These include lack of education and young women seeing symptoms as normal, lack of access to the necessary services, feeling too embarrassed, and even in some cases simply being misdiagnosed. 

In New Zealand, endometriosis affects 120,000 females. 

Sophie Hetherington, an 18-year-old Cantabrian was diagnosed with endometriosis when she was 16. She had always remembered suffering severe symptoms.

“I knew I had it when I had constant cramps getting me to the point of throwing up, whether I was on my period or not, and the pain was unbearable, stopping me from doing daily activities, such as school and work.”
Sophie Hetherington

When the symptoms got serious enough that she couldn't move out of her bed, she finally went to the doctor, but even that wasn’t a smooth process.

“When I originally went in to the doctors for pain, I got told it was just period pains and to take some Panadol and it will go away.

"Two days later I went to another doctor and she immediately referred me to the hospital mistaking it for appendicitis, and then I finally got a referral to the gynecologist about five months after.”

It then took her eight months of waiting to see her gynecologist before three months of appointments, scans, and smears to actually get her on the surgery table for her final diagnosis.

The surgery she undertook was a keyhole surgery that removed the endometriosis that was sitting on the outside of her uterus, and the cells were then sent off to a lab to get the definitive results.

However, since endometriosis is a recurring illness Sophie still sees the effects today, after the removal.

“It affects me day to day as I still struggle with the intense pains, and it still affects me working, as I’ll feel super unwell and I’ll end up not being able to move from my bed when it’s at its worst.”

Although dealing with endometriosis has been hard, Sophie still likes to keep a positive outlook on her condition to help support others in the same situation.

Sophie fun
Sophie Hetherington on Endometriosis HOLLY GRUNDY NZBS

If you or somebody you know suffers from endometriosis or potential symptoms, New Zealand has a wide range of support groups and helplines that are available 24/7.

Healthify NZ - 0800 733 227

Endometriosis New Zealand - 03 3797959 

Women's Health Action - 09 5205295